Monday, August 25, 2014

Tired of Seeing the ALS Bucket Challenge Yet?!?

So the "rave" all over Facebook for the last week or more has been this 'ALS Ice Bucket Challenge'.  Some of you may even be getting down-right sick and tired of seeing it.  My friend, Kristen Nickerson who is the America's Farmers Northeast Region Farm Mom of the Year, sent me an e-mail a few days ago nominating me to do the challenge.  For about a week or so before that I had seen plenty of friends, family, neighbors, strangers, even celebrities take a short video of themselves calling out some names of who they challenge then the final hurrah was the ice bucket going over their head and some sort of laugh, scream, squeal, or shout of "That was COLD!'"

Well, Kristen set the bar pretty high so we had to rise to the challenge.  This is Video Link of my family doing the ALS Ice Bucket Challenge:
https://www.facebook.com/photo.php?v=10152655250269920&l=4525738952428274749

It was a fun experience and I'm sure that we made some memories for the kids.  But, pause for a second...that isn't the reason that all of us are lining up to voluntarily dump ice water on ourselves.  So what is the reason?  What is ALS?  Why has this taken off to be such a social media craze?  So I did some research to answer those questions:
 "Amyotrophic lateral sclerosis (ALS), often referred to as "Lou Gehrig's Disease," is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed"...(http://www.alsa.org/about-als/what-is-als.html)

But, who actually started the Ice Bucket Challenge and why?  Take a moment and meet Pete Frates, 29, former Boston College Baseball Star who had an amazingly bright future, until he was diagnosed with ALS.  Here is his story, click on the link and meet the man behind this phenomenon:
 http://espn.go.com/boston/story/_/id/11366772/in-als-fight-pete-frates-message-loud-clear-ice-bucket-challenge

So after seeing that, doesn't it make you want to line up and just dump a bucket of cold water on yourself?  Now some people are poking fun at it such as this:




Or this:



Or even th

And there are the "Haters" that have posted negative things as to why you shouldn't, or how much water it is wasting, or people aren't actually donating, or the money isn't actually going to the research or whatever.  But, to those people I say, look someone in the face with this horrible disease of ALS and tell them that:

This is Anthony Carbajal and him, his mom, and his grandmother all suffer from ALS.  Here is his story: http://www.businessinsider.com/this-is-the-heartbreaking-als-ice-bucket-challenge-that-may-finally-quiet-all-the-haters-2014-8

So whether you choose to dump ice water on your head or not, lets get back to the fact that there are people that have this horrible disease and it hasn't gotten a lot of attention as compared to others in the past.  So what if you are tired of seeing it in your Facebook Feed.  Let ALS have the spotlight for once!  I'm sure the people that have the disease are sick and tired of having to suffer, struggle, and fight against it every day.  Let them finally revel in the fact that millions of dollars have been donated for research to help find a cure!  And finally, let us all show that we still care about each other.  Show your heart, your compassion, and your support, because the world definitely needs it!

2 comments:

  1. Well said, Jen. ALS is a horrible disease. One of Dad's funerals in Nome was for a lady who died from this disease -- she fell down her basement steps and suffered a skull fracture after an muscle somewhere in her body failed. Glad to hear the ALS foundations has raised many more millions so far for research from the world-wide "Ice Bucket Challenge." Hope they find a cure soon.

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  2. I totally, agree, mom. I'm glad that it is finally getting some attention!!!

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